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Why did Mattie Stepanek die?

Why did Mattie Stepanek die?

Muscular dystrophy
Mattie Stepanek/Cause of death
Mattie died Tuesday at Children’s National Medical Center in Washington, D.C., of dysautonomic mitochondrial myopathy, a rare form of muscular dystrophy that impairs breathing, digestion and heart rate.

What age did Mattie Stepanek die?

13 years (1990–2004)
Mattie Stepanek/Age at death
Child poet Mattie Stepanek, whose inspirational verse made him a best-selling writer and a prominent voice for muscular dystrophy sufferers, died Tuesday of a rare form of the disease at age 13.

Where did Mattie Stepanek live when he died?

Mattie died at Children’s National Medical Center in Washington, the hospital said. “Mattie was something special, something very special,” Muscular Dystrophy Association National Chairman Jerry Lewis said in a statement. “His example made people want to reach for the best within themselves.

What kind of disease does Mattie Stepanek have?

His mother, Jeni, 44, has the adult-onset form of the disease, and his three older siblings died of it in early childhood. Mattie was profiled last year in The Early Show series on American Hero.

How old was Mattie when he died from muscular dystrophy?

He was 13. Mattie died at Children’s National Medical Center in Washington, the hospital said. “Mattie was something special, something very special,” Muscular Dystrophy Association National Chairman Jerry Lewis said in a statement. “His example made people want to reach for the best within themselves.

How did Jeni Stepanek’s other children die?

Stepanek’s three other children, Katie, Jamie and Stevie, Mattie’s older siblings, all died before the age of 4. Stepanek was diagnosed with the same disease, which causes her muscles to slowly shut down, nearly 30 years ago. It means she uses a wheelchair, one decked out with colorful “Mattie Matters” bracelets and stickers.